The International Outreach of ESUN
The Liddy Shriver Initiative has an electronic journal called ESUN publishing information about sarcoma. Our USCACA Scholar Jilong Yang, and a couple of others have taken on a task of translating most articles into Chinese. Please see this article from the President of the Foundation
The International Outreach of ESUN
An ESUN Editorial
Bruce Shriver, PhD
Editor-in-Chief, ESUN
ESUN is an online, peer-reviewed, bi-monthly newsletter that contains articles of interest to patients, caregivers, physicians, and nurses. Its feature articles focus on specific sarcomas and current issues in dealing with these cancers. ESUN¡¯s regular columns cover clinical trials, recent research findings, stories of courage and hope, and news that affects the global sarcoma community. Reflecting this global community, the members of ESUN¡¯s Medical Advisory and Editorial Board come from Australia, Canada, Denmark, France, Germany, Italy, Poland, the United Kingdom and the United States. ESUN is in its eighth year of publication, and its articles are accessed more than 30,000 times each month worldwide.
We have published detailed review articles in ESUN for nineteen types of sarcoma and scores of other articles on sarcoma related topics (see the ESUN Handout). Although an increasing number of people throughout the world can read and speak English, there are many who cannot. Furthermore, reading medical and technical material in a foreign language can be particularly challenging. In order to provide native language access to ESUN material, several sarcoma physicians and researchers have translated a number of ESUN articles. In a few instances, sarcoma patients and survivors have provided initial drafts of the translations. The following twenty-five translations have already been published, and more are underway.
- Dermatofibrosarcoma Protuberans (DFSP): French and Polish
- Ewing's Sarcoma Family of Tumors (ESFT): Chinese, French, Italian and Spanish
- Leiomyosarcoma of Bone and soft Tissue: Chinese and Spanish
- Leiomyosarcoma of the Uterus: Chinese
- Liposarcoma: Chinese, French and Spanish
- Malignant Peripheral Nerve Sheath Tumors (MPNST): Chinese
- Osteosarcoma: Chinese and Spanish
- Psychological Adaptation, Coping, and Distress in Adult-Onset Soft Tissue Sarcomas: Polish
- Radiation-Induced Soft Tissue Sarcoma: Chinese and Spanish
- Rhabdomyosarcoma: Chinese, French and Spanish
- Synovial Sarcoma: Chinese, French, Italian and Spanish
When we published our first issue of ESUN in February 2004, we posted the ¡°Sarcoma Facts¡± in five languages. Today we provide them in twenty-three languages. We embrace the mantra ¡°Sarcoma Knows No Borders,¡± because sarcoma is a disease that can be found anywhere in the body and everywhere in the world. We want our efforts to include all who are affected by sarcoma and everyone working to help them.
Please join us in this global initiative! If you can help with translating materials, or if you have additional ideas for international outreach, let us know.